Thursday, July 28, 2016

The Lost Summer...

It's so hard to believe that August is just around the corner. I think that in the future I will always look back & refer to this as the "Lost Summer". I say that for many reasons , some due to cancer and some not!

As we know from my last post, my treatments have all changed.  Radiation is finished,
hallelujah (!),  but the side effects lasted for almost a month, some are still with me.  I can almost taste food again, my throat doesn't hurt any more...but my fatigue is worse than it's ever been. Just typing this blog takes me 5x longer than it used to...due to typo's I keep making, seeing double and falling asleep. Not looking for pity here...just explaining!

Since June I've been getting my monthly Faslodex injections...which I'm actually quite used to now. In June I had what they call loading shots...so I had two every two weeks. Since then its monthly. My Onc. has also increased my Zometa infusions from every 6 months to monthly. Zometa is a bone strengthener, he feels that now that my cancer has progressed I need to have it more often.

My Onc also very kindly gave me almost a month off between rads & me starting Ibrance (oral chemo). I started this on July 18. Everyday at 11a.m. I take my pill and make myself eat 1/2 a bagel or slice of toast (it must be taken with food!). Within 24 hours of starting it I had moth sores that went all down my throat. Once again a sore throat and NO appetite.  My Onc and I couldn't believe it. Had it not hurt so much I would've laughed. I guess I'm very susceptible to mouth sore. 😒. I was given meds and thankfully they're gone for now.

Months ago when Don and I had planned this summer all of the above crapola was NOT in the plans. Since this is the final summer that my parents will spend at their home on Leech Lake 😢...after 44 years...  Don & I had made the decision that I would spend the majority of my summer with them. We've only been there for two weekends, and I stayed separately for 3 days.  Damn cancer! We had also wanted to take another road trip, thinking perhaps a visit to Door County would be in order. Sadly, like everything else, I've been too sick!  And saddest of all I was too ill last month to attend the funeral a wonderful man...Dan Ness...who's wife I love dearly! I will forever feel terrible for not being there to say my final goodbyes and showing my love and support for DiAnn! 💞

But...you know I can't leave this on a low note right!  So here are some VERY positive things I'll take away from this summer:
* New friendships that I've made and the love of old friends!
* The constant support of my family...every one of you!  But always extra kudos must go out to Don and Mike. I know that this is all very scary for them, hang in there guys...I've got this!
* we had a fabulous visit from my sister Kim and her kids Matt & Meg.
* I spent wonderful quality time with Aimee & Jack.
* We've spent time with the Hein's as well as my parents
BUT BEST OF ALL...
* We can hardly wait to see Michael and Jenny on the first weekend of August. No one can possibly know how much I miss my incredible son and his wonderful girlfriend Jenny. We are tremendously proud of them and their accomplishments , and we'd never wish for them to change their dreams and move back here (!) But that doesn't mean we can't LOVE when they're with us. To this day, at 28, Michael continues to be my pride & joy! xo
So...that's it my friends. I love you dearly. I pray for you all...this time my prayer request is for Mitch Olson, who is preparing for a liver transplant.

God Bless you all!  Kathy 💞💞

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